Last night was our comedy night fundraiser for Team Lena's Smiling PHACE and Boston Children's Hospital. With the help of the guys from Funny 4 Funds and a lot of very generous prize donors and table sponsors, we raised more than $4000.
If you're looking for a way to raise money for a good cause, I can't say enough about Funny 4 Funds. These guys put on a 90-minute comedy show that had us laughing the whole time. Check them out at funny4funds.com!
As for me, I wrote Lena's story up to have on the tables. I thought I'd share it here:
Why We Walk
Lena's Story
Lena is the reason our family walks for Boston Children's Hospital. Eight years ago, she was diagnosed with PHACE syndrome which is "the uncommon association between large infantile hemangiomas, usually of the face, and birth defects of the brain, heart, eyes, skin and/or arteries." (Definition from www.angelphace.com).
In Lena's case, she had a hemangioma in her throat and an arteriovenous malformation (AVM) in her head. The one in her throat was blocking 95% of her airway, which for an infant left her a very tiny area to breathe through. A hemangioma is a knot of blood vessels - these were causing her heart to work overtime pumping the blood through.
Lena spent most of her first summer in the hospital. Before surgery, the doctors attempted to shrink the hemangioma in her throat with steroids. She likes to laugh at the pictures of herself with the "chubba-cheeks" that the steroids caused. When the steroids didn't work, they surgically removed the hemangioma. To do this, they had to remove some of the cartilage in her throat. They repaired it with a little piece of one of her ribs.
In addition to that surgery, Lena has had multiple embolization procedures to close off the blood flow to the AVM in her head. Her most recent embolization was earlier this year, hopefully her last. She will continue to have MRIs for many years to come.
Thanks to the doctors and staff at Boston Children's Hospital, Lena is a happy, healthy, and very active little girl. She takes ballet and tap dance classes, as well as piano lessons. She is a smart, creative second-grader who loves to draw and write stories.
Lena has been to (and still goes to) more doctors than most eight-year-old girls, but they don't even phase her. In fact, this past winter, when I was complaining again about getting a flu shot, Lena said, "I don't like needles either. But I just do what I have to d."
Boston Children's Hospital is near and dear to our hearts because they have made it possible for Lena to be the sweet, loving little girl that we all adore.
To help support Boston Children's Hospital, visit my page at http://fundraise.childrenshospital.org/site/TR/Walk/Walk?px=1018955&pg=personal&fr_id=1290.